Pulmonary Hypertension Program

Contact Us
Pulmonary Hypertension Program
Contact Us
Pulmonary Hypertension Program
Contact Us
Pulmonary Hypertension Program

Working for Your Child’s Best Quality of Life

Nemours Children’s gives kids with pulmonary hypertension, or high blood pressure in the blood vessels in the lungs, care that’s focused on their very best life. 

Pulmonary hypertension can be due to problems in lung development, genetic changes passed in families, congenital heart disease (conditions babies are born with), autoimmune disease or blood clots. There is no cure for pulmonary hypertension. For many babies, the condition improves as they grow.

When you come to Nemours, your child gets care that’s coordinated and convenient. Our heart team is part of integrated, award-winning pediatric heart centers in Delaware and Florida. We partner closely with pulmonologists, newborn specialists, rheumatologists, critical care intensivists and more to care for your child. 

We work together to reduce symptoms like shortness of breath, tiredness and swelling, and keep the heart healthy. We also try to slow down or even stop the disease from getting worse. Our goal is to help your child run and play to their highest ability.

Our Services

Young girl holds up a paper cut-out of a heart to frame her laughing face.

Our pulmonary hypertension care is team-based. We can schedule appointments so you can see multiple providers on the same day, at the same time in some locations. 

We provide the full spectrum of care, including:

  • Fetal heart and high-risk maternity care including diagnostic fetal echocardiograms and treatment after delivery (you may even deliver at our hospital in Delaware)
  • Advanced life support, like extracorporeal membrane oxygenation (ECMO) which takes over for heart and/or lungs
  • Pediatric intensive care expertise, including the highest level neonatal intensive care available for newborns, as well as cardiac critical care for kids with heart conditions
  • Cardiovascular genetics, with testing and counseling for your child and family
  • Comprehensive assessment, which may include diagnostic catheterization procedures using thin tubes inserted into blood vessels, advanced heart imaging like echocardiograms, cardiac MRI and CT, and exercise tests that assess heart and lung function
  • Complete medical management with pediatric experts including cardiologists, pulmonologists, cardiac anesthesiologists, sleep medicine specialists, heart failure specialists, pharmacists, advanced practice medicine, cardiac nursing, and others
  • Innovative heart procedures, including interventional cardiology and electrophysiology procedures to detect and treat certain conditions
  • Cardiothoracic surgery to repair underlying heart problems or place stents to improve blood flow
  • Cardiac rehabilitation and fitness programs, including customized exercises, nutrition and healthy lifestyle choices that may help your child breathe and feel better
  • Cardiac psychology services for your child and family, to strengthen mental health and development 
  • Supportive services from social workers, Child Life specialists and others who help you find resources and cope with having a chronic condition
  • Referral to other Nemours specialists depending on your child’s condition 

Two Leading Pediatric Heart Centers

Our heart centers offer highly advanced, integrated care just for kids and young adults with congenital heart disease. Learn about our focused programs, innovative research and exceptional outcomes.  

Conditions & Treatments

We see many conditions — far too many to list here. The conditions we treat vary depending on the location and providers selected. Don’t see a condition listed? Call us.

Because Kids Deserve to Be Kids

With the right care delivered at the right time, children with pulmonary hypertension can, and do, have an active life. Our team knows what to look for and can begin treatment early, for the best possible outcomes.

Mother embracing toddler.

Pulmonary hypertension can mimic other conditions, like asthma. Our team has vast experience with early detection when treatment may be more effective.

Your child visits with a cardiologist and pulmonologist, at the same time. You get shared expertise and convenience. 

We offer nurse care coordination for scheduling and insurance, and a direct line of communication.

Your child’s care is led by experts who publish research-backed papers on effectively managing pulmonary hypertension.

Our program addresses your child’s physical and mental wellness, with therapies that strengthen body and spirit.

Meet the Team

Nemours pulmonary hypertension teams are experienced and focused on your child's healthiest future. Meet them now. 

Close-up of smiling mom and smiling preschooler looking at laptop

Convenient Follow-Up Appointments by Video

We offer follow-up appointments through scheduled, live video visits. You can avoid waiting rooms and save travel time. Ask your doctor if this is an option for your family.