Expert, Coordinated Care for Kids
The Williams syndrome program at the Nemours Children’s Cardiac Center in Florida is one of a handful in the country that offers coordinated services with highly skilled pediatric specialists. We bring together an entire team to see children in one visit. This makes it easier for families from across Florida and the Southeast to get the best possible care.
Our team is led by a renowned cardiologist with vast experience in Williams syndrome. We work with many specialists, nutritional counselors, respiratory therapists, rehabilitation therapists, social workers and others who know how to help kids with Williams syndrome thrive. Your child gets a team of pediatric experts all in one place.
Together, our team watches your child as they grow and develop. We address problems early when treatment may be more effective. We educate your family and listen to you.
And we’re here until your child reaches young adulthood. We do everything we can to help kids with Williams syndrome live life to the fullest.
Find Williams Syndrome Care at Nemours
Find the Williams Syndrome specialist closest to you:
Leading Care From Recognized Experts
Children with Williams syndrome do better with coordinated services from an experienced team. Our program is recognized for helping kids reach their highest ability. That’s because we know what to look for and can give the right care at the right time.
- Our heart center is state-of-the-art. The Nemours Cardiac Center in Florida offers the latest heart services. We have advanced diagnostics and expert care just for kids.
- We provide inpatient and outpatient rehabilitation therapies. Our multispecialty pediatric inpatient rehab program is one of few in the state, and the only one in Central Florida.
- If your child needs surgery, they’re in good hands. Our surgeons are experts at advanced methods that need fewer, smaller cuts. This can mean a faster recovery.
- We support your whole family. We help you find school and community resources, counseling, peer support and more. We also offer play and creative therapies to help your child cope.
Heart for Kids
Our heart is in helping kids with Williams syndrome grow strong in mind and body. We work closely with families. We support you and help you find the resources you need. See how we make a difference.
Conditions & Treatments
What to Expect With Our Williams Syndrome Program
Williams syndrome can affect almost every part of the body. To get the best possible treatment, kids with Williams syndrome often need regular evaluations by eight or more pediatric specialists.
To provide the necessary multispecialty care in a kid-friendly, family-friendly way, our clinic in Orlando is just for kids with Williams syndrome. This allows your child to see all the appropriate specialists and complete any necessary tests.
Williams Syndrome Team Members
In addition to pediatric cardiologists and the Cardiac Center clinical care team, your child’s Williams syndrome care team may also include:
- Nutrition support
- Respiratory therapists
- Social worker
- Child Life specialist
- Physical therapists
- Occupational therapists
- Speech therapists
A visit usually includes consultations with specialists in nine systems of the body:
- Ophthalmology (eyes)
- Audiology (hearing)
- Otolaryngology (ears, nose, throat and voicebox, also called ENT)
- Medical genetics
- Cardiology (heart)
- Gastroenterology (swallowing, digestion and bowel function)
- Endocrinology (hormone and mineral balance)
- Nephrology (kidneys)
- Behavioral and developmental psychology
Additional specialty consultation is available when needed from specialists in:
- Neurology (nerve and brain conditions)
- Physical and occupational therapy (movement and self-care issues)
- Interventional radiology (nonsurgical blood vessel treatment using catheters)
- Speech-language pathology
- Surgery
- Pediatric general surgery (abdominal wall and digestive tract)
- Cardiothoracic surgery (chest, lungs and heart)
- Orthopedic surgery (muscle and bone)
- Urology (kidneys, ureters, bladder, genitalia)
Nemours Cardiac Center in Florida
Nemours Children’s Hospital, Florida offers advanced heart care, especially for kids. Our heart specialists have vast expertise in the most rare and complex conditions. From prevention and diagnosis to surgery, we’re here for you.
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Stay Close By
If you’re coming in from out of town, your family has access to a Ronald McDonald House located on campus. It’s a safe, affordable place to call home for a while.
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